National Organ Transplant Registry (Malta)

Overview
Type of information
Registry data
URL of the data source
https://deputyprimeminister.gov.mt/en/dhir/Pages/Registries/transplants.aspx
Description

The National Organ Transplant Register has received regular notifications since 1999. Data prior to this has been collected retrospectively but is considered to be incomplete since no regular data collection had been in place at the time. It registers all organs harvested on the islands of Malta and Gozo, whether transplanted locally or taken abroad. The register also keeps data regarding the organ donors and transplant recipients. The latter information is only available for those organs transplanted locally.

Governance and legal framework

All data is collected and processed in accordance with the General Data Protection Regulation, adopted in the Data Protection Act XX of 2018. On the 8th of October 2019, Legal Notice 263 of 2019 was published. This Legal Notice is intended to enact the Processing of Personal Data (Secondary Processing) (Health Sector) Regulations (S.L. 528.10 of the Laws of Malta) (“the Regulations”).

Funding

The Registry is part of the Directorate for Health Information and Research and is wholly funded by the Government of Malta.

Free keywords
organ transplants
transplant procedures
organ donor
organ recipient
Topics
Health systems » Health resources and activities » Care utilisation » Surgical procedures;
Health systems » Health system performance » Access » Health care coverage
Country(ies):
GEO coverage
Nuts 1
Target Population
Patients
Age range
From 0 years
Sex
Both
Data Collection Period
From 01 January 1999 - Ongoing
Language(s)
English
Updating Periodicity
Daily
Personal Identifier
National identifier
Level of aggregation
Individual
Terms of data access - URL
https://deputyprimeminister.gov.mt/en/dhir/Pages/Registries/transplants.aspx  
Terms of data access

Open data : https://deputyprimeminister.gov.mt/en/dhir/Pages/Registries/transplants.aspx  

Data request form & email: https://deputyprimeminister.gov.mt/en/dhir/Pages/request-for-data-form.aspx ; healthinfo@gov.mt.

Linkage possible
Yes
Data Owner(s)
Directorate for Health Information and Research – Ministry for Health – Government of Malta
Contact name
Ms Lorinda Camilleri
Contact e-mail
healthinfo@gov.mt
Contact info (address)

DHIR, 95, Telghet Gwardamanga, PIETA', Malta

Updated on 01 August 2022